Long QT Online Support Group
This support group is for people who are suffering from Long QT (LQTS) or know of someone who is. Topics include, but are not limited to, genetic testing, testing for long QT, symptoms, treatment, or other Long QT interests.
http://health.groups.yahoo.com/group/longqt/
Group NOTE: all group members are reminded to always use caution when reading posts and to never follow the advice of anyone in this group whether it is through the posts on the message board or individual advice off list, regardless of how reliable he/she may sound. Contact your doctor first before making any changes to your treatment regimen or starting any new activity that may impact your health. This group does not attempt to diagnose any medical conditions nor provide advice regarding treatment.
C.A.R.E. NOTE: This Yahoo group is moderated by independent Long QT patients and family members of those with Long QT Syndrome. The opinions expressed on this group are not those of the C.A.R.E. Foundation. C.A.R.E. is no way responsible for the information provided through postings made by the subscribers to this group.