Call Us Today: (800) 404-9500  care@longqt.org   
 
 
Foundation Dedicated to Teaching Arrhythmias(s), Long QT Syndrome,
 
The C.A.R.E. Mission: To formulate, promote and lead initiatives to prevent sudden cardiac death due to acquired and heritable heart rhythm disorders by:
  • Advocating increased support for comprehensive scientific research and clinical trials.
  • Educating patients, the public and healthcare professionals to increase awareness.
  • Advancing strategies to identify, protect and support at-risk individuals and their families.
This website is dedicated to the memory of those whose lives were lost to sudden cardiac death, and to the survivors, families and friends who have devoted tireless energy supporting the C.A.R.E. Foundation's mission to help save lives.

....and GREAT NEWS! The Genetic Information Nondiscrimination Act (S.358) is on the verge of passing, after 12 long years! The House bill (H.R.493) passed 420-3 on April 25 and the Senate bill has been reported out of committee. We just need the full Senate to vote on the bill to get it to the President’s desk!

Click here to tell your senators to push for GINA to come to the floor for a vote!

 

View the Highlights of our Heart to Heart patient meeting – January 20th, 2007, Los Angeles, CA - Click here for details

Click here to see the schedule and updates on the C.A.R.E. Foundation “Heart to Heart” Patient Support Meetings. 

C.A.R.E. has joined with Found Hearts photographer, Rick Ruggles, in a campaign to increase awareness and prevention of sudden cardiac arrest (SCA). Click here to learn more.  


Let the Beat Go On CampaignThe 'Let The Beat Go On' campaign is generously supported by the Medtronic Foundation. Medtronic Foundation will provide a matching donation for every bracelet you purchase. Click here to purchase.

Learn More about the ways the Medtronic Foundation provides support for a healthier quality of life in communities all over the world.  Thank you Medtronic.
 


Beautiful C.A.R.E. T-Shirts designed by Found Hearts photographer, Rick Ruggles are available now.  Wear your shirt and show that you "C.A.R.E. for your heart...all year long."  Click here for details.

  

There are many ways to show you C.A.R.E.  Click here to learn how you can make a donation, send flowers, shop on the Internet or search the Web and help C.A.R.E.
Learn more about Heart Disorders, Genetics, Medications, Professional Organizations, Screening, Advocacy and more.
Our NEW Online Community connects people with heart rhythm disorders to make friends and discuss issues that help you feel that you are not alone. Membership is FREE!  
Announcing C.A.R.E. E-NEWS!  Stay up to date on developments and events relating to Long QT and other inherited rhythm disorders.          

 Volume One Issue Two
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The Genetic Information Nondiscrimination Act has passed the House of Representatives
420-3!  For more information:
http://www.geneticfairness.org/
National Athletic Trainers Association:
Guidelines For Preparedness and Management of Sudden Cardiac
Arrest Among High School And College Athletes
- April 5, 2007
National Heart Lung and Blood Institute
NHLBI Strategic Plan: Shaping the Future of Research. April 4, 2007
New ICD Sports Registry!        The ICD Sports Registry is now enrolling participants to determine the safety of sports for patients with ICDs. -February 8, 2007
Information Letter.pdf
ICD Sports Registry Brochure.pdf
Current WebMD Articles relating to Inherited Arrhythmias
Sudden Death Genes Strike Women Most - December 27, 2006
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